Born perfectly healthy and happy, Taylor was a delight to everyone. She was always smiling.
When she was 10 weeks old, her biological father, caring for her for the first time, shook her when she would not stop crying. Our entire extended family has been left with the aftermath of this violent act.
Taylor's neurologist says she only has approximately 5% brain function left.
Children of SBS featured on this site
She is 3 years old, but functions at the level of a 3-5 month old. She is unable to sit up, roll over, talk, pick things up, stand......etc.
She has trouble swallowing thin liquids, and has everything thickened for feeding.
Taylor can now, for brief moments, hold her head up by herself. This is a great accomplishment.
We have physical therapy, occopational therapy, speech therapy, vision therapy and until recently, development therapy.
We are currently fighting with our local school district, trying to have Taylor placed in our local/home school. They are fighting us tooth and nail, wanting to send her to another town by bus each day to a facility that only has special needs children and young adults (3-21 year olds). We want Taylor to be stimulated by normal voices and play. She seems to thrive on these things.
Our road will be a long one, but Taylor is such a good natured, happy child, that she helps us cope. As long as she continues to fight for small achievements, we will be behind her, supporting her and loving every minute we share with our special girl.
Taylor has lived with me, her Great-Aunt , and my teen-age son Matthew for 2 years now. Our home is now and will always be her home...........
a safe haven
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